Changes

The first snow of the winter of 2024–2025 came today.

I awakened at five and sensed something was wrong. As I grew more conscious, I realized I was smelling smoke. That’s never a good thing, unless you’re sitting near a campfire, or burning incense. And it was ugly-smelling smoke—not the pretty scent of someone’s fireplace or woodstove, wafting in the chilly air. No. It smelled like plastic, vinyl—acrid—nothing anyone should be burning, although we’ve had our share of neighbors who burn their trash in their backyards, in the early hours of the morning, trusting that no one will care about the smoldering dioxins and other toxins they inhale while asleep. Most of our neighbors smoke, anyway, so how would they even notice it?

But I was concerned. I tiptoed around our chilly house in my bare feet, making sure that all rooms on all floors were free of an obvious problem. I mean, we do have smoke detectors, but . . . Then I stepped onto the sunporch, which was colder still, and the attached “screen” porch (now with storm windows, of course, but still fairly open to the outdoor air, since we haven’t yet chinked the windows with insulation). And the smoke odor out there was much stronger. I moved back indoors and down the stairs to the front door, and stuck my face outside: again, smoky. Ugh. Whew.

This information led to another round of the second and third floors, this time with my glasses on, squinting more carefully out the windows. Is one of our neighbors’ houses on fire, or billowing smoke? Or is someone actually burning trash covertly? If the latter, I knew the fire might already be done with, even though the heavy, still air can let the stench linger for hours after the deed. But all I saw was a diffuse haziness in the direction of the motel on the expressway. (Hmm. And we need to clean our windows. Kind of late in the season for that, now.) Somehow, I managed not to awaken Sue with all this traipsing around at 5 a.m. (I also managed not to stub my toes on anything. Huzzah!)

Well, it turned out that around 2:45 a house had blown up on the east side of town. They haven’t yet announced a cause, but my money’s on a natural gas appliance or exhaust malfunction, possibly combined with electric space heaters or some such. It’s the first time this season that people’s heaters are running full-bore, and heating systems in poor repair are getting their dangerous shakedown this weekend. Yeah, while everyone’s observing Thanksgiving and Black Friday, and all that. Happy holidays.

And yes, if you know me, you know I’m too appalled about the results of the presidential election to feel very “thankful” this year. I live in a red state that was a purple state not long ago, before a Republican supermajority and gerrymandering, and toxic fundamentalist misinformation bubbles. I’m literally surrounded and ruled over by crazy, het, right-wing Trump-Jesus-gun worshippers. . . . And Thanksgiving? Are you kidding me?

Also, my parents are a grim situation all by themselves: it’s the inevitable collision between my mom’s unbending and increasingly unrealistic notion that she and Dad can continue forever to live in their home, with its staircases, and Dad’s flat-out exhaustion and increasing disability. He is her caregiver: he staggers and stumbles around their house; he fixes all her meals and carries them to her on a platter, brings her beverages and begs her to drink them, launders her clothes and bed sheets, supplies her with Depends and Poise pads, dispenses and tracks her (and his) medications, deals with all the house upkeep, pays the bills, everything. He exercises, does PT, walks, to stay in shape (“to keep myself physically fit . . .”). As she has for years, she sits in her puffy recliner and does nothing, not even the tiny amount of walking the doctors have been telling her for years that she must do if she wants to stay at home . . . and he’s simply exhausted. And so am I.

In retrospect, my brother and I should have talked them into moving a decade ago, and if they’d done nothing, at that time, we should have done it for them then. Too late for that now.

Mom, psychologically increasingly like a toddler, expects me to quit my job and move in with them until they both are gone, which, given my mom’s genetics and lack of serious chronic illness, could be another decade, in her case. Well, actually, I don’t think she knows I have a job, because I’ve been so generous with my time with them. As a freelancer, I’ve been able to skip some hours of work in the past five years to drive them to their haircuts and doctors’ appointments, to pick up groceries, computer supplies, and what-not, but those demands have exploded in the past few years, with Mom being taken to the hospital, often with rehab, six times in the past two years, and Dad twice.

Dad had a stroke, and he needed outpatient PT after it, and he needed me to drive him there a few times a week. And there’s always the questions about the computer. Or, Why isn’t the phone working? Or, I think we might need a new water heater. Your Mom needs more Depends: this size, overnight, super absorbency. . . .

Wash, rinse, repeat. I know Dad remembers I have a job, but I’m pretty sure Mom doesn’t realize it—or if she does, she doesn’t respect it.

Talk about pushing my buttons. I try to just see it, acknowledge it, know that it’s old, old material, breathe, and move on without, like, yelling. Of course I’m not respected. And I don’t need her validation anymore.

When I tell her she can’t expect me to come take care of them at their house 24/7 for the next decade or so, she tells me that she and Dad will simply have an elevator added to their house, or they will just hire 24-hour in-home assistance. I recently sketched out the math for her: $30 an hour, times 24 hours in a day, is $720 a day; multiply that by 365 days in a year, and you’re paying $262,800 annually just for someone (some person or persons—who?) to be there to help you, in a home that’s not going to accommodate a wheelchair, which she will soon need to be in—it does not count food or food preparation, transportation, incontinence supplies, heating and cooling bills, water, house maintenance and property taxes, medical copays and drug costs, and the ever-loving cable TV and landline/internet bills. It’s just fantasyland.

In our family, the dynamic has always been to go along with Mom’s ideas, because she’s always been “the practical one.” The one good with finances. The one who takes care of the house, the bills, the do list. Balances the checkbooks. (Kind of like the myth about Republicans being good about the economy.) She was always the one to deal with the plumbers, electricians, and handymen. She used to be sharp as a tack, “on top of” everything. But those days are long gone, as she becomes more confused and lives increasingly in the past. Actually, they both are.

So it’s past time for independent living; it may already be too late for assisted living, for Mom. She’s hurtling toward skilled nursing; she doesn’t want to drink, so she gets dehydrated and gets UTIs, she doesn’t move around, she’s weak, her blood pressure tanks when she merely stands up. The idea of getting her up the staircases is a horror for me. She’s been hospitalized three times in the past six months. But she still expects us to treat her as if she knows best, and we all still tend to twirl around trying to make her happy. Of course, that is impossible. People like her will never be happy; this is how ninety years of untreated depression and anxiety disorder, with a little side order of NPD, ends up. And so we are moving ahead with plans for senior living for them both. Dad is ready. We simply leave her out of our conversations, which is easy to do since she only ever sits in her living room chair and has grown pretty hard of hearing.

So we’re in a race to get them moved into a good place where they can be safe, clean, fed, comfortable and hopefully find things to be happy about, to be entertained with; to have people to talk with; to maybe even find ways to still contribute to the world (Dad would like that, I think).

You know, I started this blog in a state of deep stress and depression. Hopelessness. Things that used to cheer me only made me feel like I’d been slapped. I was repeatedly contemplating suicide. I thought that starting a blog about the things—the few little things—that I can unequivocally claim as good would help me regain a sense that there is something still to enjoy, even when my life seems in shambles, when my career—hell, my whole life—seems a big fat joke, when I see myself as the center of all my problems. Even when I’m almost convinced that I don’t belong here, that I have no place or purpose.

I truly don’t have any goddamn time to be fucking around with a blog, or anything, anything, that is not related to my job, or with the needs of my parents. I’m not going to fuck around with Christmas cookies this year. (Well . . . maybe I’ll make a few kinds. To give to the elders who remain.) Christmas tree? Bah, humbug. I’m down on Christianity, too—all the white Christian nationalists have turned me off of religion entirely—in America and globally, the trouble, the evil, that religion causes far outweigh its so-called blessings. Overall, religion is still, always, eternally a way that greedy, mean, power-hungry people convince other people into doing horrible, selfish, mean-spirited things. I’m sick of it. Grow the fuck up and learn how to be a good person without having the imaginary threat of eternal damnation hanging over your head, okay?

But yeah, I think I’m gonna attempt another year of “Jar of Goodness.” Because I kind of need it. At least, let’s give it try before I call my doctor and ask to “up my dosage.” I’ve been doing a lot of journaling the past few years, and I have a lot I’d like to say about that. And there are several other half-baked posts I can complete and upload. Let’s keep a-goin’.